Selected Resources
A Breast Cancer Journey: Resources
Here is the online version of the Resources Appendix included in the back of my book, A Breast Cancer Journey: Living it One Step at a Time.
This list includes some affiliate links. This means that I may receive a small percentage should you decide to make a purchase. You can read more about that here.
Know of a resource that should be included here? Send me an email and I’ll take a look!
Books
BREAST CANCER BOOKS MEMOIRS
- Bald is Better with Earrings: A Survivor’s Guide to Getting Through Breast Cancer, Andrea Hutton. View on Amazon
- Better: How I Let Go of Control, Held On to Hope, and Found Joy in My Darkest Hour, Amy Robach. View on Amazon
- Emerging: Stories from the Other Side of a Cancer Diagnosis, Loss, and a Pandemic, Nancy Stordahl. View on Amazon
- Probably Benign: A Devastating Diagnosis’s 500-Mile Journey, and a Quest to Advance the Next Generation of Breast Cancer Screening, Leslie Ferris Berger, Stephen Copeland. View on Amazon
OTHER BOOKS
- The Big Ordeal: Understanding and Managing the Psychological Turmoil of Cancer, Cynthia Hayes. View on Amazon
- Boundaries: When to Say Yes, How to Say No to Take Control of Your Life, Dr. Henry Cloud and Dr. John Townsend. View on Amazon
Set Boundaries, Find Peace: A Guide to Reclaiming Yourself, Nedra Glover Tawwab. View on Amazon
Websites and Foundations
American Cancer Society: https://cancer.org
- Resources for patients and caregivers
- Information for seeking support in all areas, including financial assistance
Breast Cancer.org: https://breastcancer.org
- Reliable information about treatments and understanding results
- Online support forums
Breast Cancer Research Foundation: https://www.bcrf.org
- Provides funding to breast cancer researchers
- Blog to share research news and resources
Dr. Susan Love Foundation: https://drsusanloveresearch.org
- Focuses on research to find the cause of breast cancer
- Educates through informative articles and videos National Cancer Institute: https://cancer.gov
- Reliable and up-to-date information on treatments
- Information on survivorship
- Resources for caregivers and children
Assembling Your Team & Travel
- Who might be a part of your team: https://www.cancer.net/navigating-cancer-care/cancer-basics/cancer-care-team/oncology-team
- Second Opinions: https://www.breastcancer.org/treatment/second_opinion/wheretravel
- City of Hope: International Patients
- City of Hope: First Visit Information
- Joe’s House: Nonprofit that helps cancer patients find lodging options at a discount, https://www.joeshouse.org
- Johns Hopkins Medical Concierge Service: https://www.hopkinsmedicine.org/jhusa/patient_information/index.html
Caregiver Support
- American Cancer Society Caregiver Resource Guide: https://www.cancer.org/treatment/caregivers/caregiver-resource-guide.html
- Cancer Support Community/Gilda’s Club: https://www.cancersupportcommunity.org
- NCI Support for Caregivers of Cancer Patients: https://www.cancer.gov/about-cancer/coping/caregiver-support
Financial Resources
- CancerCare- Resources for the East Coast of the USA, https://www.cancercare.org
- CDC– List of resources with ideas to help pay for care: https://www.cdc.gov/cancer/survivors/patients/paying-for-cancer-treatment.htm
- Living Beyond Breast Cancer Fund: https://www.lbbc.org/about-us/what-we-do/lbbc-fund
Finding Cancer Care
- American Society for Breast Surgeons: https://www.breastsurgeons.org
- Breast 360: https://breast360.org
- American Society for Clinical Oncologists—choosing a cancer treatment center: https://www.cancer.net/navigating-cancer-care/managing-your-care/choosing-cancer-treatment-center
- Comprehensive cancer centers: National Comprehensive Cancer Network
- NCI designated cancer center: https://www.cancer.gov/research/infrastructure/cancer-centers
Housecleaning
- Cleaning for a Reason: https://cleaningforareason.org
- How to clean for a cancer patient: https://castle-keepers.com/how-clean-home-cancer-patient/
International Cancer Resources
- Breast Cancer Now, UK: https://breastcancernow.org
- Breast Cancer Canada: https://breastcancerprogress.ca
- Canadian Breast Cancer Network: https://www.cbcn.ca/en/
- Cancer Research UK: https://www.cancerresearchuk.org/about-cancer/breast-cancer
- UK National Health Services: https://www.nhs.uk/conditions/breast-cancer/
Metastatic Breast Cancer Resources
- Advanced Breast Cancer: Educational and support resources for people living with advanced and metastatic breast cancer. https://advancedbreastcancer.net
- Living Beyond Breast Cancer– Living with Metastatic Breast Cancer: https://www.lbbc.org/your-journey/living-with-metastatic-breast-cancer
- Metavivor: Research and support for those living with metastatic breast cancer. https://www.metavivor.org
- Project Life: A membership-based virtual wellness house
for those living with metastatic breast cancer and their loved ones. https://www.projectlifembc.com/ - Twisted Pink: Advocacy and education for people living with metastatic breast cancer. https://www.twistedpink.org
Useful Items During Treatment & Recovery
- AnaOno Intimates: Specially designed bras and loungewear for breast cancer patients. AnaOno website (aff link)
- Bras during recovery: Blog Post
- Fruit of the Loom Front Close Sports Bra: Available on Amazon
- Drain pouch: One option on Amazon
- Shirts with drain pockets: One option on Amazon
- Skincare during radiation: See Blog Post
- Recovery robe (Brobe): Available on Amazon
- Recovery wardrobe: Blog Post
Additional Resources & Blogs
- Agendia Genomic Tests: Offers two precision genomic tests to help oncologists plan care.
Their tests assess recurrence risk and also test the biomarkers of tumor samples. https://agendia.com/our-tests/ - Breast Cancer Freebies: Collection of free resources available for breast cancer patients and their families. Includes list of retreats. https://breastcancerfreebies.com
- Caring Bridge: A website designed to support people going on health journeys. Offers a way to share health updates with customized privacy settings. https://caringbridge.org
- DiepC Journey and Foundation: Provides education and information about breast reconstruction options after mastectomy. https://diepcjourney.com
- DCISionRT: Genomic test to help assess the potential benefit of radiation treatment for DCIS patients. https://preludedx.com/dcisionrt/
- His Breast Cancer Awareness: Information and support for men with breast cancer. https://www.hisbreastcancer.org/about-his
- Journeying Beyond Breast Cancer: Blog with weekly roundup posts from around the cancer community. https://journeyingbeyondbreastcancer.com
- Male Breast Cancer Global Alliance: Advocacy, community, and research for men with breast cancer. https://mbcglobalalliance.org/
- Male Breast Cancer Patient Guide: Information about male breast cancer and treatment. https://www.cancer.gov/types/breast/patient/male-breast-treatment-pdq.
- MOLLI Surgical H.O.P.E. Project: A collection of resources, interviews, support, and services assembled by breast cancer clinicians and advocates put together and maintained by MOLLI Surgical. You might
even find me on their wall! http://mollisurgical.com/hope/ - Nancy’s Point: Breast Cancer blog with many informative resources and books about her cancer diagnosis and treatment, making surgical decisions, and facing chemotherapy. https://nancyspoint.com
- No Half Measures: Metastatic breast cancer blog by Abigail Johnston. https://nohalfmeasures.blog
- Oncotype Testing: Exact Sciences does genomic testing on pathology samples to help determine the potential benefit of chemotherapy. Also has testing for DCIS. https://precisiononcology.exactsciences.com/healthcare-providers/ treatment-determination/breast-cancer
- Surviving Breast Cancer: Free events and resources for breast cancer patients and their families. https://www.survivingbreastcancer.org
- Understanding a Breast Pathology Report on Youtube: Series of informative videos about reading and interpreting pathology reports. https://www.youtube.com/channel/UC6VYKQlVo8DS5TzuvS8C_FA/featured
